Yes, it’s a sense of finality that it’s really real.
I’m glad I waited a bit to have a think because I was going to say goodbye to him. Ridiculous now I think of it and what happened when a good friend was in this situation a couple of years ago. He’s far from dead or even not being able to interact with people. There will always be the elephant in the room but both Paul and I thought no need to let it get in the way.
However I am going to ask that he asks the family to keep me and / or Steve in the loop when the time comes he can’t talk for himself. That will be the time to say goodbye and the family can decide if he’s up to hearing it.